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Central newsletter December 2011 & January 2012

The latest Central newsletter is available for download here.

Medical aids warned to pay in full

The council of Medical Schemes (CMS) would discipline medical schemes that did not pay prescribed minimum benefits (PMBs) "in full" after the regulator won a court battle with the Board of Healthcare Funders of Southern Africa (BHF) over such payment ...

Females with Haemophilia - Leonie Engelbrecht

Like most recessive sex-linked, X chromosome disorders, haemophilia is more likely to occur in males than females. This is because females have two X chromosomes while males have only one, so the defective gene is guaranteed to manifest in any male who carries it. Because females have two X chromosomes and haemophilia is rare, the chance of a female having two defective copies of the gene is very remote, so the females are almost exclusively asymptomatic carriers of the disorder. ...

Our BEE certificate

Cadiz Steenberg Classic Golf week

SA Haemophilia Foundation Western Cape was a beneficiary of the Cadiz Steenberg Classic Golf week in 2010. This donation enabled SAHF to purchase 4 motorised wheelchairs and 2 standard wheelchairs for use by PWH and persons with bleeding disorders....

Come play the Hemoaction Adventure Game

The HemoAction games were developed to help children learn about hemophilia in a fun, easy to understand, and interactive way. They can also be used by parents, nurses, and other healthcare providers to reinforce key concepts about the disease and its management. Children will also learn not to fear treatment by infusion and gain confidence and self-worth through educational play.

Gauteng NNHF Haemophilia Camp – 14 to 16 Jan 2011

Reflections by Tony Roberts (PwH, SAHF member and WFH Psychosocial committee member)

The heavy downpour of predicted rain could not dampen the spirits of 19 young men who arrived at the Happy Acres Camp, in Magaliesburg, South Africa, for a weekend of learning through activities. From the start we could sense that this was going to be a weekend to remember and cherish for a long time. We were not disappointed.

World Haemophilia Day 2011

World Haemophilia Day is celebrated annually on April 17. As part of SAHF celebrations in Western Cape this year a picnic was organized at Mnandi Beach on Saturday 16 April.

Fear of the unknown – A life story of a mother having a son with haemophilia

Fear of the unknown is pretty common. Having a child with haemophilia can make it a daily part of life. With our first child, Samantha, there were no bumps in the road. When Lucas was born two years later, it seemed that everything was fine as well. But only two days later, after a routine procedure caused an unusual amount of bleeding. Lucas was diagnosed with haemophilia.

Womens Group: 11 June

Two very successful meetings of the group were held - on 15 January, at which Sr Cruickshank was the speaker, and on 26 March when Tony Roberts spoke on Positive Discipline in Haemophilia.

Rock Leadership Training Camp : 14-16 October 2011

A camp will be held in Cape Town from Friday 14 to Sunday 16 October at the NGK camp site, Noordhoek Village.

WFH Multidisciplinary Symposium : 25-26 November 2011

This symposium will be held in Johannesburg following the MASAC meeting taking place on 24 November, venue Protea Hotel OR Tambo, Johannesburg.