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Inside a Bleeding Joint
w For children: Narrated by a child, this video describes haemophilia, its symptoms and how blood should clot. It also provides colourful, detailed step-by-step moving illustrations explaining how joints work, and what happens when a child with haemophilia gets a bleed in a joint. Also covers joint damage, self-infusion, and the importance of early detection of bleeds. Targeted for children, this video is ideal for school, summer camp and home education.
Cost: FREE
Contact: Bayer Corporation,
Pharmaceutical Division,
400 Morgan Road,
West Haven,
Connecticut 06516-4175
U.S.A.
Haemophilia in Perspective
w A 25-minute video that discusses haemophilia and its treatment, the comprehensive treatment team, haemophilia's impact on individual families, its impact on adults with haemophilia as they reflect on their lives, and some important dos and don'ts for parents. A thoughtful, well directed video that will reassure and instruct parents of children new diagnosed with haemophilia.
Cost: $12-00
Contact: Canadian Haemophilia Society,
625 President Kennedy,
Suite 1210,
Quebec,
Canada.
H3A 1K2
Hemophilia
w A 20 minute video in documentary format, covering cause, treatment, effects, complications and medical insurance. Excellent teaching format for schools and parents. Narrated, with interviews and comments from a haematologist, a mother, and an adult with haemophilia. Animated diagrams help illustrate normal blood clotting, factor deficiency and factor replacement.
Cost: $15-00
Contact: Memphis Hemophilia Foundation,
499 South Patterson,
Memphis,
Tennessee 38111,
U.S.A.
The Winning Spirit
w An upbeat 20-minute video on what every new parent should know about and expect from haemophilia. Topics covered include being a parent, initial feelings after the diagnosis, developmental stages, computer animation of what happens inside during a bleed, factor therapy, sports and activities, keeping life normal.
Cost: $5-00
Contact: Delaware Chapter of NHF,
222 South Easton Road,
Suite 119,
Glenside,
Pennsylvania 19038,
U.S.A.
Learning About Hemophilia
This 24-minute video presents a general overview of haemophilia that should be easily understood by those new to haemophilia. Topics covered include an explanation of haemophilia, severity levels, genetics, feelings, normalcy, physical activity, comprehensive care, bleeds and factor replacement.
Cost: FREE, with booklet
Contact: Therapeutic Services,
1127 Bryn Mawr Avenue,
Redlands,
California 92374
U.S.A.
Self-Infusion: Gateway to Independence
A 20-minute video and instruction book that teaches how to self-infuse.
Cost: FREE
Contact: Anne Marie Pierce,
Centeon,
1020 First Avenue,
King of Prussia,
Pennsylvania 19406-1310
U.S.A.
Looking Ahead--Living with Hemophilia
A 15-minute video discussing the emotional impact of a haemophilia diagnosis on the family. Interviews with family reveal their perceptions of haemophilia and methods of coping.
Suggested Fee: $10-00
Contact: Hemophilia of Indiana,
1100 Burdsall Place,
Indianapolis,
Indiana 46208
U.S.A.
FactorMatch
w A fun memory game that uses cards with pictures and cartoons related to haemophilia treatment and care. Improves memory while teaching about haemophilia
Cost: FREE
Contact: Baxter Health Care Corporation,
1425 Lake Cook Road,
MS LCI V-3,
Deerfield,
Illinois 60015,
U.S.A.
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