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Inhibitors: A Complicating Factor
w A brief look at inhibitors, what they are, how they
develop and how they can be treated.
Cost: FREE
Contact: Anne Marie Pierce,
ZLB Behring,
1020 First Avenue,
King of Prussia,
Pennsylvania
19406 -1310
U.S.A.
Family First
w Three kits containing information to help families
manage haemophilia in three different stages of
life: infancy, school age and adolescence. Included are the information
filled booklets--
w Your Child's Haemophilia:
What to Expect During Infancy;
w Your Child's Haemophilia:
What to Expect During the School Age Years;
w Hemophilia: The Young Adult Years
Cost: FREE
Contact: Anne Marie Pierce,
ZLB Behring,
1020 First Avenue,
King of Prussia,
Pennsylvania
19406 -1310
U.S.A.
Get Empowered about Hemophilia
--Kelley, Laureen A.
w Primarily for families with children newly
diagnosed with haemophilia, this booklet offers
goal setting methods and ways to change your perception of haemophilia to put yourself back in charge of your life.
Cartoon illustration of "before" and "after" situations
offer concrete ways to regain control during the rocky first year of haemophilia.
Cost: FREE
Contact: Grifols USA,
5555 Valley Boulevard,
Los Angeles,
California 90032,
U.S.A.
For Children:
Alexis: The Prince Who Had Hemophilia
--Kelley, Laureen A.
w Set in the early 1900s, this is the story of the
youngest child of Tsar Nicholas II of Russia, last Tsar of Russia. The
story includes how Alexis's haemophilia influenced
the course of events in Russia
that led to the Russian Revolution. (Ages 8 to adult.)
Cost: FREE
Contact: Anne Marie Pierce,
ZLB Behring,
1020 First Avenue,
King of Prussia,
Pennsylvania
19406 -1310
U.S.A.
Must You Always Be a Boy? The
Children's Storybook of Hemophilia.
-- Kelley, Laureen A.
w Four stories in Dr. Seuss-style text, exploring
adult reaction to a bleed, overprotective parents, sibling rivalry and the
classroom bully.
(Ages 3 to 8)
Cost: FREE
Contact: Anne Marie Pierce,
ZLB Behring,
1020 First Avenue,
King of Prussia,
Pennsylvania
19406 -1310
U.S.A.
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